Wednesday, August 1, 2018

Its baaack! And now...round 2 surgery opposite lung

Well, after 2 years exactly, its now time to figure out what cancer is now growing in my opposite left lung.  This is not life or death, but to stage,  find any possible genetic mutations for targeted therapy or radiation,  and I am crossing fingers my amazing surgeon and interventional radiologist  can team up together to get 2 of the biggest 4 nodes growing in order to get w nuclei and diagnose properly with a good amount of tissue for testing between the 2 nodes. Its a wedge resection this surgery, as I will never be a candidate for another lobectomy again. What I really need is a whole lung...any takers to donate a lung to me? Not joking either folks.
Apparently there are 4 nodes currently that we have been watcbing now for 2 years and 2 of these little guys are now pissed off and doubling in size in the last 6 mos, a pattern of cancer. I also have the other 2 nodes as ground glass stage, which means they are in the pre cancer stage, however, they may never get to cancer which would be best.
There is many more tiny seeds growing in this lung as well, again seed stage.
This is how it all starts....small....
And this is why my team wants to get on it right away. The earlier the better for chance of survival and better prognosis.

In the meantime, we have done a needle biopsy to find out what the hot lymph node is that keeps showing up ony pet scans....comes to finding out it is actually a benign soft tissue tumor. Not sure I believe this, however, johns hopkins lab has concluded this with the tissue provided.

My team feels this is a type of cancer called multi focal pulmonary carcinoma. This means each tumor is a completely different cancer and nucleus.  So its like having tons of totally different mutated cancers all near each other in one lung.
Crossing fingers nothing has gone to lung lymphs.

Next wed , August 8th is d -day....no one wants to put on paper stage 4 lung cancer. No one!
Tbd to next week after pathology and prayers surgery goes as good as possible!
One thing I have noted....wtf did chemo do? And no I will not do it again!

3 comments:

  1. Thanks for sharing your experiences with us. A clear reminder of what you and your family are dealing with. So easy to get swept up in our daily lives and petty worries. Thanks for helping put it all in perspective. Cindy Larkin

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  2. You are one strong, smart cookie. I admire your strength and determination, Shellie. Thank you for keeping us updated. I believe in the power of prayer and will definitely be on the prayer chain. So glad your family is always there for you.

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